$500,000 to improve IBD care

Corporate and philanthropic donations now needed to ensure program is fully implemented.

Dutton Ripoll, Fran and Josh

From left: The Hon Peter Dutton, The Hon BernieRipoll, CCA CEO Francesca Manglaviti and The Hon Josh Frydenberg.

In December, the Federal Government announced an historic $500,000 matched funding agreement to kick-start a much-needed program to improve the quality and consistency of IBD care in Australia

The agreement calls on individual donors and the corporate and philanthropic sectors to partner with CCA and the Federal Government to fully implement the program.

The ground-breaking March 2013 PwC report ‘Improving Inflammatory Bowel Disease Care Across Australia’ found that IBD care was inadequate and inconsistent. Patients currently play “geographic lottery” with the quality of care varying greatly across the country.

Some patients experience years of pain before they are properly diagnosed or effectively treated. This delay can lead to irreversible damage and surgery which could have been prevented had the disease been diagnosed and treated earlier.  In other cases patients receive high quality medical treatment while in hospital but experience unnecessary relapses due to a lack of preventative care.

An audit of a major hospital in South Australia found that 50 per cent of IBD surgeries during an 18 month period could have been avoided if patients had been cared for in a timely and appropriate manner.

‘Everyone deserves consistent, high-quality care’

“Everyone with IBD deserves to receive consistent, high-quality care,” CCA Chief Executive Officer, Francesca Manglaviti said.

“The pledge from Health Minister, The Hon Peter Dutton, acknowledges the work of CCA and the importance of early diagnosis and effective treatment for people living with Crohn’s disease and ulcerative colitis.

“We are grateful to the Crohn’s and Colitis Parliamentary Group, and key members, The Hon Bernie Ripoll MP, Federal Member for Oxley and The Hon Josh Frydenberg MP, Federal Member for Kooyong. Their support for this initiative ensures this much-needed IBD Quality of Care program will go ahead.

“A lack of quality of care hurts everyone. The PwC report found that in 2012 alone, IBD cost the Australian community $3.18 billion, including $380 million in productivity losses and $100 million in hospital costs. Early diagnosis and treatment will reduce the number and length of hospital stays, reduce the need for preventable surgery and ultimately save the community hundreds of millions of dollars, as well as improving the lives of those with IBD.”

Three stage program to improve IBD care

1.       Developing an agreed set of IBD standards of care

CCA will bring together a steering committee of IBD health professionals including gastroenterologists, colorectal surgeons, GPs, gastroenterological nurses, dieticians and psychologists to define standards from which to improve the quality of IBD care in hospitals.

2.       Auditing current IBD practices against standards

Up to 100 hospitals throughout Australia will be audited by peers against the formally endorsed IBD Standards.  Results of the audits will be fed back to participating hospitals to provide a base line from which to improve quality of care and to lobby for resources required to reduce the impact of IBD.

3.       Closing the gap

CCA together with the appropriate stakeholders will put forward a case to relevant funders to help put in place the required resources, including IBD Nurse positions to reduce the hospital burden of inflammatory bowel disease.

Corporate and community support needed

The program to improve IBD care will cost approximately $1 million – but will ultimately save hundreds of millions of dollars a year as well as improving the lives of those affected.

Mr Ripoll urged corporate Australia and community supporters to get behind the drive to fund the project. “It will make an enormous difference to the quality of life for thousands of young Australians suffering from this debilitating disease.”

Mr Frydenberg said: “Crohn’s and Colitis are debilitating chronic illnesses and government, working with the private sector, has an important role to play in providing better treatment and support to the over 75,000 Australians living with an inflammatory bowel disease”

Donate now

CCA has launched a campaign to encourage individual donors and the corporate and philanthropic sectors to raise the additional $500,000 needed to fully implement the IBD Quality Care program.

Donate to CCA’s IBD Quality Care campaign online or by phoning 1800 138 029 (credit card payments only). Or get involved with our community fundraising.

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