The national IBD Patient Experience Survey aimed to:
- assess the experience of health care for people living with IBD against established standards,
- describe the needs, attitudes toward and access to psychological services for people with IBD, and
- compare the patient experience of health care for people in different service environments.
This work expands on the patient stories gathered through the exploratory interviews reported in My IBD Story: Co-creating IBD care.
The Patient Experience Survey, an online national survey attracted more than 1000 responses from people living with IBD. The data collected was analysed by an advisory committee led by A/Professor Antonina Mikocka-Walus of Deakin University.
A research report, My IBD Experience: Australian inflammatory bowel disease patient experience of health care research report 2018, focussing on the quality of care according to the Australian IBD Standards and mental health attitudes and services was launched in November 2018.
The report can be viewed here.
The project is supported by unrestricted educational grants from Takeda Pharmaceuticals Australia, Ferring Pharmaceuticals and Janssen Australia and New Zealand (Janssen-Cilag Pty Ltd).