The national IBD Patient Experience Survey aims to:
- assess the experience of health care for people living with IBD against established standards,
- describe the needs, attitudes toward and access to psychological services for people with IBD, and
- to compare the patient experience of health care for people in different service environments.
This work will expand on the patient stories gathered through the exploratory interviews reported in My IBD Story: Co-creating IBD care.
The Patient Experience Survey, an online national survey attracted more than 1000 responses from people living with IBD. The data collected will be analysed by an advisory committee led by A/Professor Antonina Mikocka-Walus of Deakin University. A report focussing on the quality of care according to the Australian IBD Standards and mental health attitudes and services will be produced and published later in 2018.
The project is supported by unrestricted educational grants from Ferring Pharmaceuticals and Takeda and Janssen.