My IBD Story

There is strong evidence that people’s stories about their healthcare provide valuable information for improving health.

share-your Crohn’s & Colitis Australia is gathering these stories in a structured way to analyse using a method developed by the Consumer Health Forum Australia.

We are seeking people living with a confirmed diagnosis of Crohn’s disease or ulcerative colitis to participate in an interview to describe their experience of the journey they have had living with Crohn’s disease or ulcerative colitis.

Who can be involved?

• Anyone with Crohn’s or colitis, regardless of how long you have had the disease or how severely it has affected you. We want stories that help us to understand the good and the bad of the quality of health care that you receive.
• Anyone being treated through the public or private hospital system.
• Carers/parents of young children are welcome to participate.

What will you have to do?

There are just a few things to do over the course of a couple of weeks that will take around two hours in total:

1. Express interest and provide some information about yourself to guide selection
2. Sign a ‘consent to participate’ document
3. Participate in a phone interview (30 minutes- 1 hr) at a suitable time between 22nd May and 30th June 2017.
4. Review the notes taken by the interviewer to confirm your story is accurately reflected.

Important: Story submissions are open until 30 May 2017

What will be the benefits?

Analysis of the patient experience stories will provide practical evidence that will complement the results of the recent IBD hospital audit. It will ensure that improvements in planning and delivery of IBD care include the opinion of people living with IBD.

How do I get involved?

Email your expression of interest to ibdaudit@crohnsandcolitis.com.au.

Be sure to include your:

  • Name
  • State
  • Phone number, email address
  • Skype username (if available):
  • Number of years living with inflammatory bowel disease
  • Whether you have had treatment in a private practice or through a public hospital.
  • Crohn’s disease or ulcerative colitis

If you have any queries feel free to contact Wayne Massuger on (03) 9006 6973.