For more than 30 years, Crohn’s & Colitis Australia (formerly the Australian Crohn’s and Colitis Association) has been making life more liveable for over 85,000 Australian men, women and children living with Crohn’s disease or ulcerative colitis – collectively known as inflammatory bowel disease (IBD).
Crohn’s & Colitis Australia (CCA) is a not-for-profit company limited by guarantee, governed by a board of directors who represent the IBD community.
We are a registered Health Promotion Charity and Deductible Gift Recipient.
ABN: 42 082 747 135
At CCA we dream of a future that is free of Crohn’s and colitis. We empower people to live fearlessly while we help search for a cure.
We believe in being fearless.
At CCA we’re about improving quality of life by helping people understand, respond to and actively manage their care. We want people to be authentic and unapologetic about their Crohn’s or Colitis, whether that leaves them laughing or crying.
On our journey to finding a cure, our ambition is to empower and support our community, encouraging innovation, advancing quality of care and facilitating new knowledge informed by deeper research.
Fundamentally, we are an advocate and an educator, leading tough conversations about taboo topics.
We know being fearless means there will still be bad days, bad months, or bad years – this is a longterm and life-altering condition – it’s about giving people the courage, confidence and the ability to face things head on.
Because in fearlessness, there is strength.
- An omni channel provider of support services with extensive reach and engagement
- Accessible fearless and frank communicator and advocate of information and education
- Data and evidence are core to our work and measurement of impact
- Helping in the search for a cure, we build research capacity
- We are a trusted organisation, recognised and respected by others, innovative and financially sustainable
What we do
Crohn’s & Colitis Australia’s primary purpose is to provide support services, advice and encouragement to people suffering from inflammatory bowel disease (IBD). Whilst CCA doesn’t cure the illness it can remove some of the burden for people living with IBD and their families.
Crohn’s disease and ulcerative colitis, the predominant IBDs, can be diagnosed at any age, though it is most commonly diagnosed in people aged between 15-35 years when education, career and family building are at a peak.
While we invest in research for a cure, CCA continues to advocate for world best treatments and health services for those living with IBD. Through our programs we offer education and support for Australia’s growing Crohn’s and colitis community and raise awareness of the disease. Importantly, our services are offered free of charge.
We rely on the generosity of volunteers, donors and community fundraising to continue our work.
Monthly support group meetings held throughout Australia provide participants with a safe and supportive environment to express themselves openly, while receiving support and understanding from others who have had similar experiences.
IBD Telephone Helplines
If you want to speak to someone about Crohn’s disease or ulcerative colitis information, support or ways to manage your health, CCA offers two telephone support services – the Crohn’s and Colitis Helpline, and the Crohn’s and Colitis Nurseline.
Click here to learn more or call 1800 138 029 and press option 1.
Through iConnect, our online support platform.
IBD information forums
Held in various places around Australia, these popular forums feature expert speakers and the opportunity to make connections with local support services.
Click here to find out about upcoming forums and learn about information shared at recent forums.
The IBD Quality of Care Program aims to influence the organisation, resources, and provision of health care to promote better, person-centred outcomes for people living with IBD, including producing the 2016 Australian IBD Standards, a national audit of hospitals, two surveys on the patient experience of care, and the preparation and delivery of the IBD National Action Plan on behalf of the Australian Government.
CCA also funds research grants including the Mandy & Edward Yencken Postgraduate Research Scholarship, Angela McAvoy Fellowship, and the Young Investigator Award.
Can't Wait Program
The Can’t Wait Card issued to members of CCA who have been formally diagnosed with inflammatory bowel disease helps holders to access a toilet in a time of urgency.
Bringing together teenagers living with IBD for three days of fun, adventure and activities with peers who understand the challenges of living with the condition.
Crohn's & Colitis Hub
Crohn’s & Colitis Hub’s resources include news, articles, features and videos curated from all across the web, including medical journals, functioning as a one-stop website focusing on IBD and related issues.
Including a quarterly magazine, ‘Inside Insight’, information booklets and IBD Toolkit for Members.
Find out more about membership by clicking here.
Volunteer Organising Teams
Leading peer support activities including: support group meetings, creating local media awareness, raising funds for local needs, and organising education sessions in partnership with CCA.