Global network of IBD Organisations
- Crohn's & Colitis New Zealand
- Crohn's & Colitis Foundation of America (CCFA)
- Crohn's & Colitis Foundation of Canada (CCFC)
- European Federation of Crohn's & Ulcerative Colitis
- Irish Society for Colitis and Crohn’s Disease
Association François Aupetit (AFA) – www.afa.asso.fr (French)
DCCV, Deutsche Crohn Colitis Vereinigung – www.dccv.de (German)
RMT – Riksfoerbundet foer Mag- och Tarmsjuka (RMT) – www.magotarm.se (Swedish)
AMICI Onlus, Association Nazionale per le Malattie Infiammatorie Croniche dell’Intestino – www.amiciitalia.net (Italian)
ACCU España – Confederación de asociaciones de enfermos de Crohn y Colitis Ulcerosa de España – www.accuesp.com (Spanish)
Australian Government websites
Centrelink is part of the federal government Department of Human Services. It delivers payments and services for retirees, the unemployed, families, carers, parents, people with disabilities, Indigenous Australians, and people from culturally and linguistically diverse backgrounds, and provides services at times of major change.
Department of Health
The Australian Government Department of Health website for families, seniors, adults, parents, teenagers, carers etc. Topics covered include education and prevention, conditions and diseases, health products, rural health, services etc.
Food Standards Australia New Zealand
Food Standards Australia New Zealand has publications and fact sheets for the consumer. Formerly known as ANZFA (Australia New Zealand Food Authority)
National Health and Medical Research Council
The NHMRC is Australia’s peak body for supporting health and medical research, development of health advice for the community, professionals and goverment. Also provides advice on ethical behaviour in health care and research.
Therapeutic Goods Association
The Therapeutic Goods Association carries out a range of assessment and monitoring activities to ensure therapeutic goods available in Australia are of an acceptable standard.
Library and References
Australian Medicines Handbook
Australian Medicines Handbook provides practical, reliable, comparative medicines information resources for health professionals.
The Australian Prescriber is an independent publication providing information about drugs and therapeutics.
MIMS is the publication used by GPs, specialists and pharmacists, it provides specific information about medications for a patient’s specific medical condition.
Better Health Channel
The Better Health Channel is developed by the Victorian Health Department. Excellent source of information and useful links for everybody.
A website developed & maintained by Doctors, covers medical issues, conditions, healthy eating and fitness.
UK National Institute for Clinical Excellence
A UK website for the National Institute for Clinical Excellence (NICE), an organisation providing the UK with guidance on promoting good health and preventing and treating ill health.
USA National Library of Medicine
The United States National Library of Medicine is a website for the general public and professionals.
The Therapeutic Guidelines is a not-for-profit organisation deriving guidelines for therapy from the worlds literature.
Gastroenterological Society of Australia
The GESA website is a great resource for families and professionals, with great graphics and easy to read explanations of the bowel etc.
Gastroenterological Nurses College of Australia Inc
The GENCA site is useful resource for information relating to specialist gastroenterological nurses.
American Gastroenterology Association
The website for the American Gastroenterology Association is a useful site for people living with IBD, families and professionals, with great visuals to help understand the bowel.
British Society of Gastroenterology
The website for the British Society of Gastroenterology provides information for treatments, resources and other useful information.
International Organization for the Study of IBD
The International Organization for the Study of Inflammatory Bowel Diseases (IOIBD) is the only international worldwide organization devoted to these chronic and sometimes disabling diseases involving different parts of the gastrointestinal tract.
Society of International Gastroenterology Nurses
The SIGNEA website is a resource for gastroenterology nurses.
IBD Support Australia
A general information service for people with IBD.
An online mental health service offering information, assessment, and online treatment programs (“eTherapy”) for anxiety and/or depression for individuals with diagnosed with Inflammatory Bowel Disease (IBD).
Other Health Organisations
Australian Divisions of General Practice
The Australian peak body representing doctors (General Practioners) throughout Australia.
Australian Hypnotherapists' Association
A useful site for those wanting to find an accreditated Hypnotherapist.
A useful website for sufferers, families, friends and professionals.
Australian Council of Stoma Associations Inc
The Australian Council of Stoma Association represents the nationwide regional stoma assocations. Useful information with links to support groups and other important information.
Australian Psychological Society
This website provides a service for finding a registered psychologist in Australia.
The Coeliac Society of Australia
The Coeliac Society website is a great resource for those sufferers, family members and professionals looking for futher information and assistance.
- Irritable Bowel Information and Support
A useful website for those wanting more information relating to osteoporosis.
Leiomyosarcoma (LMS) is a rare form of cancer that most commonly affects the uterus but can also affect other areas such as the bladder or gastrointestinal system.
Rural Doctors Association of Australia
A useful website for those wanting more information pertaining to rural doctors.
Dietitians Association of Australia
The website for the Dietitians Association of Australia provides general information on healthy eating and a service to find an accredited dietician with a special interest in IBD.
Continence Foundation of Australia
Continence Foundation of Australia represents the interests of Australians affected by, or at risk of, bladder and bowel control problems and act as an advocate for their interests. It exists to serve all Australians by promoting bladder and bowel health.
Consumer's Health Forum of Australia
The Consumer’s Health Forum is the national voice for consumers, helping shape the health system.
Chronic Illness Alliance Inc
The Chronic Illness Alliance aim is to build a better focus in health policy and health service for those with a chronic illness.
Private Health Insurance Ombudsman
The Private Health Insurance Ombudsman provides an independent service to help consumers with health insurnance problems and enquiries.
Psychological Therapy Program
Psychological Therapy Program for People Living with Inflammatory Bowel Disease by the IBD Clinic Dept of Gastroenterology & Hepatology.
ory Bowel Disease
Australian Clinical Trials
The website aims to provide reliable and up-to-date information and advice about clinical trials in Australia for the public, researchers and industry. For the public, the website provides easy to understand information about clinical trials in Australia and how to become involved in a clinical trial. For industry, it provides information on the advantages of conducting clinical trials in Australia. For researchers, it provides an overview of the legislative and regulatory environment and useful links.
Amercian Clinical Trials
The website for American clinical trials.
European IBD Trials
This is the first multilingual and multicentered listing of current clinical trials in the field of inflammatory bowel diseases in Europe. Patients and doctors have access to the latest study information, including details of all the European Patient IBD Associations.
Find a toilet
Can't Wait Affiliates
The Can’t Wait Card is issued to members of CCA who have been formally diagnosed with Crohn’s or colitis (IBD), to help them gain access to a toilet in times of urgency. By recognising the card, retailers, businesses and venue operators allow people IBD access to their toilets when needed.
National Public Toilet Map
The Toilet Map provides information on over 16,000 publicly available toilets across Australia, including accessibility, opening hours and facilities, such as showers & baby change.
An online resource providing tips, videos and general information about IBD.
Low FODMAP diet for Irritable Bowel Syndrome
The research team at Monash University have developed a diet to control gastrointestinal symptoms associated with IBS/FGID.
The National Prescribing Service Medicinewise team provides people with advice on how to use medicines safely.
Medic Alert specialises in personal emergency medical identification.