Personal stories

Read stories written by our community about their lived experience of Crohn’s and colitis and how they have overcome challenges and adversity.

“Elevating the voices of others” – Lauren’s story

Despite the challenges, I eventually found the strength to pursue my passion for mental health and disability advocacy. Returning to study and gaining qualifications to work in this field has been a beacon of hope for me in my journey. It’s a passion I might never have discovered if not for my illness.

Ruby’s story

We are now looking at doing a clinical trial to help others get the medication they need, and to also hopefully find a medication that will work for a while.

“Bringing hope to others” – Paul’s story

After receiving strong advice from the surgeon and after months of hospital stays away from my wife and small children, we decided to book in the surgery. Lucky too, as my sick colon ruptured moments after it was removed. One year and three major surgeries later, I am truly thankful to be alive. I no longer feel sick and I finally feel myself again. I’m able to play with my kids again and do things together as a family.

Finding a community – Lottie’s story

I would strongly encourage others who are diagnosed to speak to somebody about what they are feeling and going through.  

“Silent warriors” – Lily’s story

People with Crohn’s disease are silent sufferers — warriors who continue to push through every day no matter what their body is doing. They are people who sit through ATAR exams in nappies and on gastro stop, people who are determined not to let their illness stop them from ruining their dreams, people who endure so much daily just to keep going. I am proud to say I am one of those people who continues to battle this disease everyday.

“The bag for me” – Rebecca’s story

I could write for hours on living a life with UC and the challenges that come with it — including the pain, the fatigue, side effects from the medication and at times the embarrassing situations.  I guess I am writing a snippet of my story to let others know that life with a bag is manageable and lead to a better quality of life compared to the years of living hell without it. This is especially the case with a great medical team around you and family and friends who care and support you.

Natalie’s story – a nurse’s journey with ulcerative colitis

Now, as I stand on the other side of that tumultuous journey, I am filled with a renewed sense of purpose. I’m so passionate about helping others navigate the complexities of IBD and learning as much as I can about this disease. Although not cureable, I am optimistic for the future, and I hope we can stop the stigma associated with all thing poo and bowel related.

“A better, more empathetic person” – Elena’s story

Even during the most difficult procedures, medication trials, and despite enduring disappointments, I can still happily say that I was able to find peace in the small moments and experienced some of the best years of my life.

Food fight: Charlotte’s Story

The key to making great meals is learning how to substitute foods, especially if you have dietary restrictions like mine. Understanding how many food products contain wheat was mind-blowing at first. It was challenging, but I learned quickly to do my homework before buying anything packaged or pre-made.

Using art and craft to cope: Monique’s IBD story

think it is important to have a hobby that you can do at home during these times where it is a struggle to leave the house and also something that can provide you with some distraction and a sense of accomplishment. Now I use my crafts as a way to process the many emotions you go through when living with IBD. 

“Extending beyond the ordinary” – Aiyahna’s story

We have a magnificent opportunity to teach others around us how to flourish — regardless of their circumstances or the challenges we are facing. 

Inspiring others and raising awareness: Tahlia’s story

I am hoping my story will inspire others and raise awareness for this disease.